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“Shannon Lord tells the heart-rending story of a family confronting its own genetic messaging. With persistence, insight, and extraordinary courage, she heads down an uncharted path which leads to a discovery that has caused multiple challenges, often debilitating, to generations of her own Hunter clan. Shannon’s gifts as a writer, a mother, and eventually a powerful patient advocate shine through in this book, which explains in gripping detail how one brave woman turned tragedy into triumph. A profoundly satisfying read!” — Roberta Murphy Wright, lifelong friend