Dmd Life art & me (el. knyga) (skaityta knyga) | Ian Griffiths | knygos.lt

Aprašymas

Ian has Duchenne Muscular Dystrophy the doctor tells my parents, a severe, fatal muscle-wasting disease that will lead to an early death. This is a chronicle of the first twenty five years of my life living with DMD read through as my ability to walk disappears, as my breathing deteriorates, as my heart fails and as I become increasingly paralysed. Despite all the ventilators and mini tracheotomies I've still got my positivity and determination to see me through. I'm fighting back by campaigning and lobbying all the while helping a charity try to rid the world of Duchenne's forever.


This is a unique first of a kind autobiography about Duchenne, a muscle wasting disease which affects 1 in 3500 males and very rarely girls, death usually occurs in the mid to late twenties. I am currently in my mid twenties as this is being written. No other sufferer of Duchenne has (at the time my book was originally released) written from their perspective before. Previously only parents of sufferes would write because of the much lower life expectancy back then.


Read through my many trials and triumphs, Duchenne has led me on a fraught path but I've been privileged to meet many important people (including former Prime Minister Sir John Major) and survived a near death experience back in 2001.


Here is a quote from the 5 star review of my book by The Book Bag "...Ian's in his mid-twenties now and he's written Dmd Life: art and me to explain what it really feels like to live with the disease. And when I say 'really feels like' I do mean that. Ian doesn't gloss over anything. It's a story that heart-warming and heart breaking and should be required reading for anyone who might come into contact with a DMD sufferer..."